Rare Diseases Epidemiology: Update and Overview (Advances in Experimental Medicine and Biology)

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9783319671420: Rare Diseases Epidemiology: Update and Overview (Advances in Experimental Medicine and Biology)
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<P>THE FIELDS OF RARE DISEASES RESEARCH AND ORPHAN PRODUCTS DEVELOPMENT CONTINUE TO EXPAND WITH MORE PRODUCTS IN RESEARCH AND DEVELOPMENT STATUS. IN RECENT YEARS, THE ROLE OF THE PATIENT ADVOCACY GROUPS HAS EVOLVED INTO A RESEARCH PARTNER WITH THE ACADEMIC RESEARCH COMMUNITY AND THE BIO-PHARMACEUTICAL INDUSTRY. UNIQUE APPROACHES TO RESEARCH AND DEVELOPMENT REQUIRE EPIDEMIOLOGICAL DATA NOT PREVIOUSLY AVAILABLE TO ASSIST IN PROTOCOL STUDY DESIGN AND PATIENT RECRUITMENT FOR CLINICAL TRIALS REQUIRED BY REGULATORY AGENCIES PRIOR TO APPROVAL FOR ACCESS BY PATENTS AND PRACTICING PHYSICIANS.</P>

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“This second edition provides an update on the rapidly evolving field of rare disease research since the 2010 publication of the definitive first edition. ... The intended audience is clinicians, epidemiologists, and policymakers, as well as other professionals involved in rare diseases and research. The contributing authors are well versed in areas related to rare disease epidemiology, research, and health policy.” (Victoria L. Crabb, Doody's Book Reviews, October, 2018)

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The fields of rare diseases research and orphan products development continue to expand with more products in research and development status. In recent years, the role of the patient advocacy groups has evolved into a research partner with the academic research community and the bio-pharmaceutical industry. Unique approaches to research and development require epidemiological data not previously available to assist in protocol study design and patient recruitment for clinical trials required by regulatory agencies prior to approval for access by patents and practicing physicians.

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Manuel Posada De La Paz
Verlag: Springer-Verlag Gmbh Dez 2017 (2017)
ISBN 10: 3319671421 ISBN 13: 9783319671420
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Buchbeschreibung Springer-Verlag Gmbh Dez 2017, 2017. Buch. Zustand: Neu. Neuware - The fields of rare diseases research and orphan products development continue to expand with more products in research and development status. In recent years, the role of the patient advocacy groups has evolved into a research partner with the academic research community and the bio-pharmaceutical industry. Unique approaches to research and development require epidemiological data not previously available to assist in protocol study design and patient recruitment for clinical trials required by regulatory agencies prior to approval for access by patents and practicing physicians. 667 pp. Englisch. Artikel-Nr. 9783319671420

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