Isbn: 9798194583751 - fearless as always: a story about duchenne muscular dystrophy (3 Ergebnisse)

PAP. Zustand: New. New Book. Shipped from UK. Established seller since 2000.

PAP. Zustand: New. New Book. Shipped from UK. Established seller since 2000.

Taschenbuch. Zustand: Neu. Neuware - Leo always dreamed of exploring the stars. But when he is diagnosed with Duchenne muscular dystrophy (DMD), everyday adventures become harder. With the love of his family, the help of his friends, and a little courage, Leo learns that being fearless doesn't mean doing everything alone-it means keeping hope, dreaming big, and taking one step at a time. Endorsement'Fearless As Always is a moving story about a young boy named Leo living with Duchenne muscular dystrophy. Through hardships, Leo finds continuous support in his family, care team, and community. Although his body changes, his dreams remain unchanged. He grows into a voice for other young people, turning his own journey into a source of hope and courage for others. This is a meaningful and uplifting book for children living with rare diseases and the families who walk alongside them. Through effective use of storytelling, the authors do an outstanding job of raising awareness and showing how progress for children with rare diseases is supported by thoughtful policy and strong systems of care - providing hope to many individuals with Duchenne muscular dystrophy.'- Dr. Rifat Atun, Dean for Education and Innovation, Harvard T.H. Chan School of Public HealthAbout FlairCareDean Wang and Danielle Wang are the founders of FlairCare, a 501(c)(3) nonprofit organization based in the United States. FlairCare aims to cultivate healing environments that enrich youth physical and mental health. Reaching local and global communities, the organization's initiatives include drawing with pediatric patients, collaborating with children's hospitals, and creating the As Always illustrated book series. Please reach out to join our mission, delivered with Flair.…