9780807040256 - harnessing grief: a mother's quest for meaning and miracles von kefalas, maria j. (13 Ergebnisse)
- Hardcover
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Hardcover. Zustand: Very Good. With dust jacket. It's a well-cared-for item that has seen limited use. The item may show minor signs of wear. All the text is legible, with all pages included. It may have slight markings and/or highlighting.
- Hardcover
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Zustand: As New. Like New condition. Very Good dust jacket. A near perfect copy that may have very minor cosmetic defects.
- Hardcover
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- Hardcover
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Zustand: Very Good. Former library copy. Pages intact with possible writing/highlighting. Binding strong with minor wear. Dust jackets/supplements may not be included. Includes library markings. Stock photo provided. Product includes identifying sticker. Better World Books: Buy Books. Do Good.
- Softcover
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Paperback. Zustand: Very Good. The book has been read, but is in excellent condition. Pages are intact and not marred by notes or highlighting. The spine remains undamaged.
- Hardcover
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Zustand: Like New. Most items will be dispatched the same or the next working day. An apparently unread copy in perfect condition. Dust cover is intact with no nicks or tears. Spine has no signs of creasing. Pages are clean and not marred by notes or folds of any kind.
- Hardcover
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HRD. Zustand: New. New Book. Shipped from UK. Established seller since 2000.
- Hardcover
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Zustand: New. 2021. Hardcover. . . . . . Books ship from the US and Ireland.
- Hardcover
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Zustand: New.
- Hardcover
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Hardcover. Zustand: Brand New. 193 pages. 8.75x5.75x1.00 inches. In Stock.
- Hardcover
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Zustand: New. Maria J. Kefalas is a professor at Saint Joseph&rsquos University in Philadelphia and the author or coauthor of three books, including Hollowing Out the Middle, Working-Class Heroes, and Promises I Can Keep. Dr. Kefalas is also .
- Hardcover
Anbieter: AHA-BUCH GmbH, Einbeck, DeutschlandAHA-BUCH GmbH
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Buch. Zustand: Neu. Neuware - The inspiring story of a mother who took unimaginable tragedy and used her grief as a force to do good by transforming the lives of others.When Maria Kefalas's daughter Calliope was diagnosed with a degenerative, uncurable genetic disease, the last thing Maria expected to discover in herself was a s…uperpower. She and her husband, Pat, were head over heels in love with their youngest daughter, whose spirit, dancing eyes, and appetite for life captured the best of each of them. When they learned that Cal had MLD (metachromatic leukodystrophy), their world was shattered. But as she spent time listening to and learning from Cal, Maria developed the superpower of grief. It made her a fearless warrior for her daughter. And it gave her voice a bell-like clarity--poignant and funny all at once.This superpower of grief also revealed a miracle--not the conventional sort that fuels the prayers of friends and strangers but a realization that, in order to save themselves, Maria and Pat would need to find a way to save others. And so, with their two older children, they set out to raise money so that they, in their son PJ's words, could 'find a cure for Cal's disease.' They had no way of knowing that a research team in Italy was closing in on an effective gene therapy for MLD. Though the therapy came too late to help Cal, this news would be the start of an unexpected journey that would introduce Maria and her family to world-famous scientists, brilliant doctors, biotech CEOs, a Hall of Fame NFL quarterback, and a wise nun, and it would also involve selling 50 thousand cupcakes. They would travel to the FDA, the NIH, and the halls of Congress in search of a cure that would never save their child. And their lives would become inextricably intertwined with the families of 13 children whose lives would be transformed by the biggest medical breakthrough in a generation.A memoir about heartbreak that is also about joy, Harnessing Grief is both unsparing and generous. Steeped in love, it is a story about possibility.
- Hardcover
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Buch. Zustand: Neu. Harnessing Grief | A Mother's Quest for Meaning and Miracles | Maria Kefalas | Buch | Einband - fest (Hardcover) | Englisch | 2021 | Beacon Press | EAN 9780807040256 | Verantwortliche Person für die EU: Libri GmbH, Europaallee 1, 36244 Bad Hersfeld, gpsr[at]libri[dot]de | Anbieter: preigu.
