Smiles for Miles Everyday is an Adventure: Miles, his buddy Oscar & their friend Bumble Bee.. Dieser Artikel ist nicht verfügbar.Smiles for Miles Everyday is an Adventure: Miles, his buddy Oscar & their friend Bumble Bee.

(Smaller version - for children to carry around) Fictitious story of the journey of our young character Miles. Life seen through the eyes of a young child that is in a wheelchair. Enjoy being part of Miles' daily activities. Interactive adventures, very inviting for the family to read together. Learning colors, counting and many other life lessons for a young child. Come along with us on this adventure.

My name is Penny Brunner. My husband, Jerry and I currently live in Central Pennsylvania. We have four loving children, Matthew, Jessica and her husband Joe and Troy and one grandson, Miles. We are BLESSED to be the grandparents of Miles Brunner. Miles was born on October 31, 2012. Shortly after birth Miles was admitted to Penn State Milton S. Hershey Children's Hospital, Hershey, Pennsylvania. Miles was diagnosed with a very rare and currently incurable Pediatric Genetic Disease named Nonketotic Hyperglycinemia NKH. Currently there are approximately 600 living cases of NKH world-wide. August of 2013, myself and our son (Miles' Father) Matthew Brunner established, Smiles for Miles Non-Profit Organization. It is our goals to bring AWARENESS of Nonketotic Hyperglycinemia NKH and other such Orphan Pediatric Genetic Diseases. We also raise funds to HELP families currently battling such diseases. It is also our goal to assist in raising funding to enable continued RESEARCH. Nonketotic Hyperglycinemia NKH is currently incurable. It is our hope through continued RESEARCH, that we will someday see a CURE and in the meantime, see treatments continue to improve to enable these dear children to have the best quality of life possible. Miles has changed our lives. We are so BLESSED to have Miles. He is living PROOF to never give up and to always TRUST IN GOD! PROVERBS 3:5 Trust in the LORD with all thine heart; and lean not unto thine own understanding. I have dedicated the remaining years of my LIFE to doing all that I can to voice the needs of research to help save the lives of precious newborn and the unborn children that are affected by Orphan Pediatric Genetic Diseases. We must realize that these precious children and their families are valuable and they deserve ALL that modern medicine and science has to offer. PLEASE LIFT THESE DEAR CHILDREN AND THEIR FAMILIES UP IN PRAYER! With Love and Sincere Appreciation, Penny L. Brunner (Nana to Miles)