Joy's commitment to demystifying the symptoms and challenges of multiple sclerosis has resulted in the writing of a book that offers hope and inspiration to others. As Joy persevered, she learned a multitude of lessons that enabled her to maximize her level of functioning and to find meaning in even the most difficult challenges. She invites readers to take a walk with her through her story in order to connect to their own tenacity and resilience. By presenting the information in a reader friendly style, anyone facing adversity will find helpful strategies and the courage to 'Never Give Up' in their own difficulties -Margaret Evans RN, BScN, CPCC Registered nurse, life coach, author
Never Never NEVER Give up
An Inspiring MS JourneyBy M. Joy (Willms) NeufeldBalboa Press
Copyright © 2012 M. Joy (Willms) Neufeld
All right reserved.ISBN: 978-1-4525-4936-1Contents
1. FRANZ AND HEIDI........................................................12. OUR CHERISHED MOTHER...................................................43. THEY CAN'T HELP ME?....................................................94. WHAT HAPPENED TO OUR ANGEL?............................................135. PAPA WAS VERY LONELY...................................................186. WHAT A JOLT............................................................247. A TYPICAL TEENAGER.....................................................278. LIKE JOSEPH? WORKING THROUGH PAIN AND HURT.............................329. GRADUATION AND THEN?...................................................3710. WEDDING BELLS.........................................................4211. THEIR TROUBLES BEGAN?.................................................4712. THE JOY OF CHILDREN...................................................5013. HEIDI HAD FUN.........................................................5514. KIDS DO GROW UP !.....................................................6015. AM I GOING BLIND?.....................................................6316. NEVER TRUST A SLEEPING DOG............................................6917. MENTAL AND EMOTIONAL FATIGUE..........................................7218. THANK YOU FRANZ!!!!...................................................7619. "HOW DID YOUR ILLNESS AFFECT THE CHILDREN?"...........................8320. WHAT DOESN'T DESTROY YOU WILL MAKE YOU STRONG!!!!.....................8621. A TREASURE HUNT.......................................................9022. TENACITY - RESILIENCE!................................................9323. HUMOUR................................................................9724. FAMILY SECRETS........................................................10125. THE MYSTERY OF DANCE..................................................10426. HEIDI'S SPIRITUAL JOURNEY.............................................11127. HEIDI'S TRAVEL FRUSTRATIONS...........................................11428. TAKE A WALK WITH ME...................................................11729. THE MISSING PUZZLE PIECE..............................................12130. NEWS FROM ITALY???????????............................................12531. THEY WERE IN THE AIR..................................................12832. LIBERATION............................................................13333. CAN IT BE?............................................................13734. LEARNING TO WALK?.....................................................14035. IT HAS BEEN ONE YEAR!.................................................14236. MY DESTINY............................................................145
Chapter One
FRANZ AND HEIDI
A beautiful sunny day dawned. It was Canada Day, July 1st. The birds chirped loudly waking Heidi from a deep slumber.
"Oh Franz, is it that time already?" asked Heidi as she yawned and rubbed her eyes.
"I'm afraid it is Heidi," responded Franz as he snapped the last button on his blue plaid shirt. "It's time to go for my walk," Franz smiled as he pecked Heidi's cheek. "See you at supper." Franz shut the bedroom door so Heidi could get some more sleep.
"Oh, my legs," Heidi complained as she sat up at the edge of the bed.
"Why do they feel so stiff and heavy?" she wondered. "I sure wish someone had a few answers for me. Oh well, I guess that's my lot in life." murmured Heidi as she pushed herself to her feet. "One day, maybe I'll get some answers." Heidi had her breakfast and swept the kitchen floor. "That's all I've done this morning and I'm already very tired. I have to sit down," Heidi thought to herself.
Heidi sat down on the beige brocade couch in the family room. She turned the television on and noticed black spots in her line of vision. As she looked at the T.V. Heidi noticed two of everything.
"What is going on?" she questioned. "Why am I seeing double? I guess this is another weird action my body is having. I'll have a good night's sleep and it will probably go away."
Heidi had learned over the years that her body wasn't normal like other people's seemed to be. She, however did not have pain, so was very grateful for that.
Walking was a problem and at times she fell! "Why do I trip over my own feet?" Heidi questioned. On a good day Heidi and Franz went for a walk. When Heidi got tired her right leg behaved weirdly. It would bend out of shape, almost twisting. Heidi would have to sit down on the curb while Franz walked home to get the car. Heidi could not walk any further.
At the end of the day Franz came home to dinner. "How was your day?" greeted Franz warmly.
"It has been interesting," replied Heidi. "This morning when I looked at the T.V., I noticed two black spots in my line of vision. As I continued to watch T.V. my eyes saw double of everything."
Franz hugged Heidi. He knew she struggled with her body.
"If it continues tomorrow, I'll go see an optometrist," sighed Heidi.
That evening, Franz and Heidi went to see some friends.
"While we were travelling on the road, I noticed the centre yellow lines were double. I saw two yellow lines crossing each other," said Heidi. "The blacktop too, looked like two roads crossing each other in front of me. But I have no pain or weird feelings in my head. It will disappear," thought Heidi.
The next morning, there were no changes in her eyesight. She would have to go see the optometrist. He would tell her what was wrong.
Heidi made an appointment for that afternoon. She drove to her appointment, parked the red convertible, and sat down in the office. Heidi was quickly ushered into the optometrist's office where he had a look at her eyes. He was startled!
"This is not something I can help you with. You must go to the hospital," he insisted.
Heidi was shocked! She left the office, stepped into her car and drove home.
Franz got home from work and Heidi spoke, "The optometrist insists I go to the hospital. I don't know what this is all about. I guess in time we'll find out."
Franz and Heidi soon entered the hospital. After some time the doctor spoke, "What is the problem?"
"I am seeing double and we were told to come here and see the doctor," spoke Heidi.
The doctor soon checked her eyes. Then he called two more doctors as he didn't have an answer. The other doctors were puzzled as well.
Finally, one spoke, "go see an opthamologist on Monday."
"Yes, we will," sighed Heidi.
The following Monday morning, Franz took Heidi to the eye specialist. He was a very kind, gentle doctor.
He took his instruments and peered into Heidi's eyes. "Do you have numbness in your face?" he questioned. "Have you lost taste in your tongue?"
"No problems there," Heidi replied.
He continued, "If you did, I would suggest you've either had a stroke or you have Multiple Sclerosis. Don't even think of any of those possibilities. You've probably got a virus. It will last for six weeks and then disappear."
The following day, Heidi sat on the couch and wondered, "Am I going to be blind? Why is my eyesight affected?"
"More questions," thought Heidi. " Will they ever end?"
Chapter Two
OUR CHERISHED MOTHER
The air was charged with excitement! "We are going on a picnic, we are going on a picnic!" The children chorused.
What a family! This family of two...