Andy had been Participant 066 in the ‘failed’ Bristol GDNF trial to see if his Parkinson’s could be slowed, stopped, or reversed. Unbelievably, his had been reversed and then his ‘cure’ was taken away.
Distancing themselves from the fallout of a ‘failed’ experiment the scientific world abandon the participants with no planned aftercare and an experimental device still implanted within their brains.
Andy continues his personal GDNF journey whilst coming to terms with the repercussions of the trial and the increasingly downward spiral that his own Parkinson’s takes.
In the mean while the GDNFer’s relentlessly pursue their hopes for a new trial, asking the questions no one wants to answer, persuading the experts to reassess their thinking.
The Group unites the Parkinson’s world with a nationwide event they organise, which raises money and awareness of neurotrophic factors, such as GDNF. The Group slowly begin to earn the respect of science, they ask for a seat at the table of all things GDNF, but are not necessarily welcome.
The group become involved in the design for a possible new GDNF trial, but it is a rocky road and who knows if they will reach the destination and if they do, when?
Are they being unreasonable?
Are they asking for too much?
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