Is there a child in your life who's been severely injured or is facing a serious illness?
"One Step at a Time" is a book, keepsake and guide for coping with a child's hospitalization. It offers a unique way for a parent to ask the right questions, record important medical information, and express joy, fear and hope during a very difficult time. And most important, it encourages parents to take care of themselves physically, emotionally and spiritually.
"One Step at a Time" includes: - Messages and helpful hints from parents who have been through similar experiences
- Tips from nurses and other health care professionals
- Inspirational poems, quotes and meditations
- Information on hospital terminology, chains of command and protocols
- Guidance on navigating the ups and downs of the hospital experience-from admission and handling visitors, to adjusting to a new environment and advocating for your child's needs
- Journal pages for parents to document day-to-day events during their child's hospitalization and to express their emotions
- Tips on leaving the hospital and going home
"One Step at a Time" offers valuable hospital information and serves as a type of "user's guide." But it's also much more. It's a road map to courage, strength and honest self-exploration - a beacon of light for surviving one of the most difficult experiences a parent will ever face.
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Jennifer Smith is a registered nurse specializing in pediatric intesive care with babies and children. After working at Texas Children's Hospital for three years, she returned to the Pacific Northwest where she continues her nursing career in the pediatric intensive care unit of Seattle's Children's Hospital and Regional Medical Center. Jennifer lives in Gig Harbor, WA, and enjoys skiing, running and spending time with friends and family, including her husband, Matt, and their daughter, Sadie. Bradie Kvinsland is a Certified Child Life Specialist, working with the emotional and developmental needs of acute and chroniocally ill children and their families. Bradie has spent her career working at Swedish Medical Center in Seattle, WA, with pediatric patients in oncolgoy,. intensive care, and surgical services. She has created programs to enhance family-centered care and advocates for the needs of children and families through hands-on clinical work. Bradie received her bachelor's degree in Family Studies from Washington State University. She resides in Gig Harbor, WA, with her husband, Eric, and their children, Ryker and Bayden.
We are health care professionals: a child life specialist and an intensive care nurse who care for babies and children. Our satisfaction comes from helping sick children, as well as embracing and sustaining you, the family members and friends. We wrote One Step at a Time to offer you support during your child's hospitalization. The effects of prolonged lack of sleep, food and spiritual support during a hospital stay are devastating. As a parent, you may have difficulty facing important decisions and coping when your sick child requires your attention. It may be almost impossible to handle the details of your home and work life. In addition, relationships with your spouse or partner may become distanced, strained and cold. Devotion to your sick child can sometimes mean excluding not only your spouse, but your healthy children as well. Your lives can become parallel and separate instead of together and synergistic. One Step at a Time can help.
Our vision for One Step at a Time came from the realization that more can be done to support and help you during your child's hospitalization. Our goal is to help give you a voice and empower you with the tools you need so that you are able to be a vital part of the family-centered care which is available to you during your child's hospital stay. In this book, you will find words of advice from other parents and health professionals. There are reminders and tips to help you deal with your new environment as well as spaces for you to track important information and events.
Perhaps hardest of all, but so very important, there are many opportunities to record your feelings. Your ability to search inward is a vital key to coping and taking care of yourself. Maybe the book is more than you can handle right now. Maybe it feels overwhelming. That's okay. We hope you will give it time - because we believe working with this book can help penetrate your feelings of anger and fear, help you work through your roller-coaster emotions, and help you regain a sense of control. We believe each and every one of the patients we work with is well cared for. Through this book, we hope to sustain and embrace you as well. Then we'll know our work has a larger purpose beyond medicine. And we'll be reminded-in a very real way-of why we do our jobs.
Jennifer Smith, RN Bradie Kvinsland, CCLS
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