CONGENITAL ADRENAL HYPERPLASIA: A Parents' Guide - Softcover

Congenital Adrenal Hyperplasia (CAH) is an inherited disorder of the adrenal glands. Its effects can be wide-ranging and serious-from problems of ambiguous genitalia in baby girls; to problems with growth and physical development; to problems with infertility and hormone imbalance. When undiagnosed and untreated, CAH can also be life threatening. While severe forms of CAH are uncommon, milder forms can affect as many as 1 in 100 people. Yet, CAH remains difficult to understand and care for. Congenital Adrenal Hyperplasia: A Parents' Guide takes a nuts-and-bolts look at CAH-what this condition is, how it is inherited, and how it is treated and monitored. This new book on CAH written for a lay audience will be welcomed by all patients and parents who, until now, have had few places to turn for in-depth information. "As parents you will find this book understandable, complete, and comforting in its upbeat approach. Any pediatrician caring for a CAH child will also be well advised to obtain a copy. I wish I had had one sooner." -Dr. John D. Crawford, Emeritus Professor, Harvard Medical School

C. Y. Hsu is the mother of a child with Congenital Adrenal Hyperplasia. She holds a Bachelor of Science degree from the Massachusetts Institute of Technology in Cambridge, Massachusetts, and a Master of Architecture degree from Harvard University. Ms. Hsu is a licensed Architect who has practiced in Boston, New York, and Williamsburg, Virginia. Currently, she has her own small architecture firm in Connecticut. Scott A. Rivkees, MD, is Professor of Pediatrics at the Yale University School of Medicine in New Haven, Connecticut, and Director of the Yale Child Health Research Center, a think tank devoted to finding treatments and cures for childhood diseases and illnesses. He is also Associate Chair of Pediatrics for Research, and Chief of the Section of Developmental Endocrinology and Biology at the Yale School of Medicine.