Running The Coast For A Cure: One Man's Journey For His Niece With Sturge-Weber Syndrome - Softcover

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For the past 10 years, Al DeCesaris has volunteered his time and devoted tremendous effort to fighting Sturge-Weber Syndrome, a rare and life-threatening neurological disorder that afflicts his niece Jenna. Through charitable events, extraordinary athletic endeavors, and his “For A Cure” books, he has created considerable awareness about the disorder and raised significant funds to further the efforts to find a cure. Al’s crusade began not long after the birth of his niece. Recognizing the importance of raising funds for the research and treatment of Sturge-Weber Syndrome, he and his family organized an annual concert and auction fundraiser called Bands on the Bay. Since its inception, the event has raised over one million dollars and helped fund research that led to the ground-breaking discovery of the cause of Sturge-Weber Syndrome. In 2013, he set out on a solo cross-country bicycle journey in honor of Jenna, pedaling over 3,000 miles from Santa Monica, California to Ocean City, Maryland. The following year, he took on another incredibly challenging athletic endeavor, this time on foot. Running solo close to a marathon a day for three consecutive months, he covered 1,935 miles as he made his way from Lubec, Maine to Key Largo, Florida. Through his charity ride and run, he created awareness about Sturge-Weber Syndrome across the country, raised critical funds for medical research, and brought hope to his niece and countless others suffering with this devastating disorder. Al wrote about his experiences on the road: the things he saw, the emotions he felt, the challenges he faced and of the extraordinary people he met along the way. His books, Crossing America For A Cure and Running The Coast For A Cure, are honest, entertaining and, above all, inspirational. To further the efforts to find a cure for Sturge-Weber Syndrome, Al is dedicating all profits from the sale of his “For A Cure” books to medical research. Al is extremely passionate about the charitable work he’s involved in and is always willing to share his story of advocacy and service with others. Using his extraordinary athletic endeavors as examples, Al delivers an uplifting message of inspiration and hope, and demonstrates how we all have the power to make a difference in the world through charitable work. His audiences are motivated and empowered to find their purpose, go the distance for those in need, and create positive change in the world!