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List of Illustrations, ix,
Acknowledgments, xi,
List of Abbreviations, xiii,
PART ONE. SETTING THE STAGE: INTRODUCTION, THEORY, METHODS,
1. Introduction: Environmental Justice and Contested Illnesses Rachel Morello-Frosch, Phil Brown, and Stephen Zavestoski, 3,
2. Embodied Health Movements Phil Brown, Rachel Morello-Frosch, Stephen Zavestoski, Sabrina McCormick, Brian Mayer, Rebecca Gasior Altman, Crystal Adams, Elizabeth Hoover, and Ruth Simpson, 15,
3. Qualitative Approaches in Environmental Health Research Phil Brown, 33,
4. Getting into the Field: New Approaches to Research Methods Phil Brown, Rachel Morello-Frosch, and Stephen Zavestoski, 46,
5. Environmental Justice and the Precautionary Principle: Air Toxics Exposures and Health Risks among Schoolchildren in Los Angeles Rachel Morello-Frosch, Manuel Pastor, and James Sadd, 64,
PART TWO. WORKING IN THE ENVIRONMENTAL HEALTH FIELD: ETHNOGRAPHIC STUDIES,
6. A Narrowing Gulf of Difference? Disputes and Discoveries in the Study of Gulf War–Related Illnesses Phil Brown, Stephen Zavestoski, Alissa Cordner, Sabrina McCormick, Joshua Mandelbaum, Theo Luebke, and Meadow Linder, 79,
7. The Health Politics of Asthma: Environmental Justice and Collective Illness Experience Phil Brown, Brian Mayer, Stephen Zavestoski, Theo Luebke, Joshua Mandelbaum, Sabrina McCormick, and Mercedes Lyson, 108,
8. Pollution Comes Home and Gets Personal: Women's Experience of Household Chemical Exposure Rebecca Gasior Altman, Rachel Morello-Frosch, Julia Green Brody, Ruthann A. Rudel, Phil Brown, and Mara Averick, 123,
9. The Personal Is Scientific, the Scientific Is Political: The Public Paradigm of the Environmental Breast Cancer Movement Sabrina McCormick, Phil Brown, Stephen Zavestoski, and Alissa Cordner, 147,
10. School Custodians and Green Cleaners: Labor-Environmental Coalitions and Toxics Reduction Laura Senier, Brian Mayer, Phil Brown, and Rachel Morello-Frosch, 169,
11. Labor-Environmental Coalition Formation: Framing and the Right to Know Brian Mayer, Phil Brown, and Rachel Morello-Frosch, 189,
12. The Brown Superfund Research Program: A Multistakeholder Partnership Addresses Problems in Contaminated Communities Laura Senier, Benjamin Hudson, Sarah Fort, Elizabeth Hoover, Rebecca Tillson, and Phil Brown, 209,
PART THREE. ETHICAL CONSIDERATIONS,
13. Toxic Ignorance and the Right to Know: Biomonitoring Results Communication; A Survey of Scientists and Study Participants Rachel Morello-Frosch, Julia Green Brody, Phil Brown, Rebecca Gasior Altman, Ruthann A. Rudel, Carla Pérez, and Alison Cohen, 227,
14. IRB Challenges in Community-Based Participatory Research on Human Exposure to Environmental Toxics: A Case Study Phil Brown, Rachel Morello-Frosch, Julia Green Brody, Rebecca Gasior Altman, Ruthann A. Rudel, Laura Senier, Carla Pérez, and Ruth Simpson, 245,
15. Conclusion Phil Brown, Rachel Morello-Frosch, and Stephen Zavestoski, 261,
Appendix: Contested Illnesses Research Group's Nuts and Bolts and Lessons Learned Laura Senier, Rebecca Gasior Altman, Rachel Morello-Frosch, and Phil Brown, 269,
References, 275,
List of Contributors, 307,
Index, 309,
Introduction
Environmental Justice and Contested Illnesses
Rachel Morello-Frosch, Phil Brown, and Stephen Zavestoski
Hazards are produced by business operations, to be sure, but they are defined and evaluated socially—in the mass media, in the experts' debate, in the jungle of interpretations and jurisdictions, in courts or with strategic-intellectual dodges, in a milieu of contexts. —ULRICH BECK, RISK SOCIETY, 1992
As mirror and conscience of society, sociology must define, promote, and inform public debate about deepening class and racial inequalities, new gender regimes, environmental degradation, market fundamentalism, state and non-state violence. I believe that the world needs public sociology—a sociology that transcends the academy—more than ever. Our potential publics are multiple, ranging from media audiences to policy makers, from silenced minorities to social movements. They are local, global, and national. —MICHAEL BURAWOY, "2004 PRESIDENTIAL ADDRESS: FOR PUBLIC SOCIOLOGY," 2005
During the summer of 2008, community members in Richmond, California, filed out of a packed and raucous city council meeting after being handed a major setback. Despite Herculean organizing efforts and passionate testimony by fence-line neighbors, council members had voted to approve a conditional-use permit allowing the Chevron oil refinery to increase its production capacity by refining lower-grade crude oil with a higher sulfur content, resulting in increased emissions of harmful sulfur dioxide, sulfates, and metals (Jones 2008; Baker 2007). The Richmond Chevron refinery is one of the nation's largest, covering 2,900 acres, employing a thousand workers, and processing more than 240,000 barrels of crude oil daily into gasoline, jet fuel, diesel, and lubricants (Chevron Corporation 2009a, 2009b). At the meeting, community members presented scientific data from an NIH-funded household exposure study conducted collaboratively by an independent research institute, two major universities, and a regional environmental justice organization. The data showed that refinery activities were adversely affecting indoor and outdoor air quality and that the refinery should reduce emissions, not increase them. After the meeting, one of the scientists spoke with a community organizer about whether science could play a productive role in localized, high-stakes policy decisions such as the one that had just unfolded. The organizer's assessment illuminates the potential, the limitations, and the contested role of science in struggles for environmental health and justice: "Science has its limitations, but it develops strong advocates—people can speak for themselves. The data generated supports the claims, experiences, and demands that the community members bring to the podium in policy settings. Community members can say, `I know this because my home was tested and all these chemicals were found in my house!'"
As decisions about social policy and environmental regulation in the United States, are increasingly shaped by scientific and technocratic discourse, some communities and most industry stakeholders have used their own data and challenged scientific evidence to advance their interests. Yet the insistence on "better" science in decision making often reinforces dominant political and socioeconomic systems by slowing down policy making, precluding precautionary action, and ensuring regulatory paralysis through (over)analysis. Through this scientization of decision making, debates regarding the costs, benefits, and potential health and societal risks of new technologies and industrial production may be dominated by experts who work to ensure that battles over policy remain "objective" and divorced from their socioeconomic and political contexts. This outcome is achieved in three ways. First, questions are posed in scientific terms that may be impossible to answer scientifically, because of uncertainties in the data or the impracticality of...
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