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Lost Lullaby - Hardcover

Alecson, Deborah Golden

 
9780520088702: Lost Lullaby

Inhaltsangabe

The author discusses her decision to let her severely brain-damaged daughter die, recounting her consultations with lawyers, doctors and experts in medical ethics, and her battle to convince the medical and legal establishment to respect her decision.

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Über die Autorin bzw. den Autor

Deborah Golden Alecson is a freelance writer and poet who lives with her husband and son in Hartsdale, New York.

Aus dem Klappentext

"By describing her family's encounters with the hypocrisy and cruelty surrounding the care of imperiled newborns, Alecson adds a powerful voice to those calling for a restoration of the rights of parents as decision-makers and for compassionate restraints on the use of neonatal life support technology."—Helen Harrison, author of The Premature Baby Book

"A searing account of a mother's encounter with a new, frightening, and misguided victim of American medicine: The prolongation of the life of a severely brain-damaged newborn infant is a good that trumps all other considerations. This gripping story should remind us all of C. S. Lewis's chilling insight: "Man's power over Nature is really the power of some men over other men, with Nature as their instrument."—William A. Silverman, M.D., Columbia University

"With disarming honesty, wry wit, and extraordinary precision, Deborah Alecson reveals that surreal, shadowy place known only to parents who have delivered a sick baby. Lost Lullaby is an act of faith, and one can see its creator growing wiser as her story unfolds—to give the reader not only indispensable information but also solace and strength."—Roberta Silman, author of Blood Relations, Beginning the World Again, and other novels

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