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Community Genetics and Genetic Alliances: Eugenics, Carrier Testing, and Networks of Risk (Genetics and Society) - Hardcover
Inhaltsangabe
Book by Raz Aviad E
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Críticas
'Using opportunities to reduce suffering is a laudable intention, whatever it is called. The road to hell, however, is paved with good intentions too. Thanks heaven critics like Aviad Raz keep us alert by pointing out unwanted side effects. A warned human counts for two.' – Leo P ten Kate, Professor Emeritus of Clinical Genetics, VU University Medical Center, Amsterdam, The Netherlands
'Everyone confronting the social, cultural and ethical aspects of this field should reflect carefully on what this book has to say. It is an original, empirically informed and invaluable addition to the literature' – Ruth Chadwick, Director of the ESRC Centre for Economic and Social Aspects of Genomics, Cardiff University, UK
Reseña del editor
Carrier testing of adults provides information about the risk of passing a genetic mutation to your children, leading to reproductive (and some say, eugenic) decisions. Excessive carrier screening may have adverse effects, but it can also prevent suffering and open up new reproductive options. Raz's study focuses on the interplay of community genetics (the medical organisation of carrier screening) and genetic alliances (networks of individuals at risk), exploring how 'genetic communities' are emerging both within existing ethnic groups and around patients' organizations.
While the interplay between carrier testing, reproduction and eugenics has sparked many discussions, this study provides a novel and much-needed perspective on its actual implementation and interpretation by community members. Conflating a cross-cultural spectrum of genetic communities, the benefits and perils of supporting (or restricting) carrier screening are located within broader social issues such as religion, ethnicity, multi-culturalism, abortion, stigmatization, suffering and care-giving. While carrier screening emerges as ultimately a morally justified pronatalist endeavour for the reduction of suffering, thus being different in principle from the 'old' eugenics, it can also carry unintended adverse consequences if left unattended to consumers, communities, or health professionals.
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- VerlagRoutledge
- Erscheinungsdatum2009
- ISBN 10 0415496187
- ISBN 13 9780415496186
- EinbandTapa dura
- Auflage1
- Anzahl der Seiten208
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Community Genetics and Genetic Alliances: Eugenics, Carrier Testing, and Networks of Risk (Genetics and Society)
Anbieter: Reuseabook, Gloucester, GLOS, Vereinigtes Königreich
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Hardcover. Zustand: Used; Very Good. Dispatched, from the UK, within 48 hours of ordering. Though second-hand, the book is still in very good shape. Minimal signs of usage may include very minor creasing on the cover or on the spine. Artikel-Nr. CHL6936896
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Community Genetics and Genetic Alliances : Eugenics, Carrier Testing, and Networks of Risk
Anbieter: AHA-BUCH GmbH, Einbeck, Deutschland
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Buch. Zustand: Neu. Neuware - The social and bioethical aspects of carrier testing and its assimilation by specific groups are examined through several qualitative case studies in traditional (religious, ethnic) as well as modern (secular-consumerist) communities in Israel and the U.S. Comparing the views of community members and health professionals, the analysis offers a new look on the relations between eugenics and 'genetic responsibility.'. Artikel-Nr. 9780415496186
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